1. If we had the choice, we would never cancel plans.
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2. Our illness won’t just go away. It isn’t a cold.
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3. We don’t know how to answer you when you ask us if we’re feeling better yet.
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Because we aren’t…and we might never be.
4. Sometimes, all we need is to just know you are here for us.
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5. We have exhausted all resources, so if there was a cure, we would know about it.
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But thank you for trying, and finding holistic cures.
6. We’re trying very hard to lead a normal life.
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7. Some days, it’s a struggle just to get out of bed. But on other days, we feel as if we could run at least part of a marathon!
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8. We have a difficult time explaining how it feels to suffer from chronic pain.
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9. We need a lot of sleep.
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10. Please, please do not tell us that someone, somewhere has it worse than we do.
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That only makes us feel worse.
11. You’d think dealing with pain on a daily basis would mean we always know how to manage it. Nope.
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12. We don’t want you to stop asking us to hang out.

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No matter how many times we have to say no!
13. Just because you haven’t heard of our condition doesn’t mean it isn’t real.
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14. We may not look sick, but we are sick.
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15. We don’t necessarily want sympathy, we just want acceptance.
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We just want our feelings and conditions to be validated by you and society.
16. We can’t just take medicine and make it all go away.
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But, like, we wish!
17. More often than not, we want you to ask us about our condition.
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You will not upset us.
18. It may be a little difficult for us to listen to your adventures.
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But it’s not because we don’t care — because we want to have adventures of our own.
19. And most of all, we want you to know we appreciate you and everything you do.
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Thanks for being a part of our life.
Don’t agree? Did we forget something? Tell us about it in the comments! #SpooniesUnite

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